i have had this horrid thing for the 5 years and still fighting it, i have had the orbital decompression, muscle realiement, lid operations steriods azathioprine. yet i still like im losing my eye sight. i cant stand the day light ( that really hurts ) even on cloudy days it can hurt my eyes. i even get rainbows around things now like the street lights or car headlamps if im in the car with my huisband.they are burning all the time, red, to see is like looking throught water all the time, and i cant seem to get around especially where steps are concerned, depth semms to be a problem also.. i am very worried about losing my sight all to gether. can anyone tell me please do any of you suffers with the same horrid thing as this have the same problems. i would really like to know. one of the consultants told me i could see better now than before. ( yea right ) they need to try living with it.