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Fibromyalgia and work

  1. I have recently been diagnosed with fibromyalgia and CFS, this has been a blow to me and I feel quite isolated with this condition. Everytime I try to explain to people how I feel and what pain I'm going through no-one really understands. My boss at work understands because his wife suffers with the condition and rhuematoid arthritis.

    My doctor is very understanding and we are trying to adapt the appropriate pain relief in order for me to go back to work.

    Has anyone got any ideas?

  2. As a fellow-sufferer of 15 years or so, you have my heartfelt sympathy; even now I sometimes feel that lots of folks don't consider this to be a real illness. Fortunately my GP is clued in and supportive, but at the end of the day, how many pills can one take? I try to live one day at a time depending on what kind it is, and try not to feel guilt when I can't function. So, if you can't do it, don't; if you need a sleep have one.

    Keep going, you're important!

    Best regards smile

  3. As A fellow sufferer....I take PREGLABIN for nerve pain....TRAMADOL for pain...PARACETAMOL at same time as tramadol as works better taking together......I also take CO-ENZYME Q10......VITAMIN D ...MELATONIN ..to help with my sleep. I take melatonin inbetween 6-30pm and 7-30pm...found it help with my eratic sleep patterns. You need a supportive GP AND FAMILY to help you recover...Pace yourself and dont overdo things or symptoms return twice as bad...good luck with your recovery...Sharon x

  4. Thank you Tivmeldrew and Sharon that's helpful.

    I will be receiving a phonecall from my GP tomorrow hopefully. I will mention the various medications she may try me on them. I was on slow release morphine then went to tramadol due to the drousy effect, but with tramadol I find that I have constant shakes increased.

    When it was confirmed that I had fibromyalgia at the rhuematology clinic they mentioned I was low on Vitamin D so hubby decided to buy over the counter vitamins. So obviously it is a long term illness then? Is there any chance of it going away?

    Thanks for your advice though it has helped, and nice to know I'm not alone smile

  5. There is no cure, but they can help control the pain. dont over do it. Get proper rest as much as you can. Ask to be referred to the Pain Management Clinic if there is one at your nearest hospital. Contact Fibromyalgia.UK for more information. Hope this helps.

    Los

  6. i too have me/cfs and find it difficult to express to people how it feels. I have spent most of the past week in bed or on the sofa felling like poo. I dont really have a supportive doctor and feel very deflated everytime i see him. Im waiting for an appointment for a support group and hopefully will get a place this month. My sister-in-laws friend has m.e and attended the meetings and found them really helpful. Almost everyone i speak to knows someone with either m.e or fibromyalgia so there must be doctors out there who do believe its real, just not mine!! rolleyes

  7. Aww bless ya sammiej, you seem bit low about how you're feeling with ME and CFS, don't give up hun we are all here to support you and each other. Just because you don't have spots or a limb missing, general public can't see what's wrong. I'm standing up for us at my surgery, luckily I have a supportive doctor and family. Although I have support I feel people need to be educated about our illnesses and how to deal with us as individuals and how to help us with our conditions. There are many websites and if you type into your search engine you will find self help groups local to you. If not give me your area and I will search or try and help you. Kind regards

    Lollypops x

  8. aww thanks, thats lovely. like you say unless people can see a physical disability they assume your ok. ive now had my appointment through for my group sessions and start in 2 weeks so hopefully that will help. Good luck on your journey, i hope you find something that helps.xx

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