I am 51 years old and just recently I was a fit as any 25-year old and was quite certain I was going to live till I was 150. Now I feel like an 80 yr old lady. I've been suffering w/ this pain now for over 3-months. Went to four doctors prior to being referred to a Rheumatologist. A Physician's Assistant friend of mine told me to look up PMR on the internet. My symptoms fit to a T, so I thought. Increasingly elevated ESR (sed rate) and C-Reactive Protein levels. Rheumatoid Factor (RA) was negative twice. Pain startedin my hip flexors and then into my shoulders.
My description of my pain (and I have a very high tolerance) is the most prominant during the night and in my shoulders. I have not been able to sleep lying down, but must sleep in a chair. I have lost range of motion in both arms and my strong muscles are all but gone. If I move my arms to far, too fast...it literally feels as if someone has ripped my arm off. I scream, cry and am wrything with pain. I've fallen a couple of times. I have had some moving around type pain to left knee and now both hands (which feels like joint pain).
The Rheumatologist I saw last week (after 5-minutes) told me I had Rheumatoid Arthritis and that there is no cure and that I would just need to come to grips with it. He wanted me to take an injection of Prednisone, which I refused until the labwork that he did is back. I don't buy the diagnosis of RA.
I am currently being treated via a doctor in the UK (Psionic Medicine) with homeopathic remedies. I do not wish to mask my pain w/ Prednisone, but I will probably need to bite the bullet soon as my pain persists (although somewhat improved) with homeopathy.
My question for anyone on this website with PMR is I want someone to describe their pain. Does anyone feel like it's deep in the muscles and tendons vs. the actual shoulder joints?
I have searched and searched and I don't think the doctors have a clue what this pain is like.
I was a nurse for over 20 years and I know what Predinisone does and I do not wish to be on it at all, let alone as a long term solution. Nor do I wish to take Methotrexate or Plaquinill.
I don't mean to be negative. I am searching for answers.
Kim S (USA)_ [color=indigo:b9a7bd32c2][/color:b9a7bd32c2]