Hello Lesley. I am into my fourth year with PMR and it's a beast to diagnose and treat. It is a disease where all others have to be discounted, rather than one positive result giving a definite answer. The first rheumatologist I saw declared I was too young at 53+ to have PMR as it could only start at 55! To that point my GP had put me on 40mg prednisilone, but the rheumatologist changed my presrciption to amitryptilline and ibuprofen. After three weeks of struggling I had to admit defeat and pleaded to be allowed to take predisilone again. The relief was tremendous - within hours. This has happened on another occasion too, and also when I took echinacea (a herb to improve immunity - it blocks the action of steroids).
Yes, the side effects of steroids are awful, but they keep the symptoms at bay and may allow you to function normally again. The side effects of naproxyn are also nasty - I also struggle with psoriasis and the itching on my feet at night nearly has me crying - but it could be due to naproxyn.
I also advise contacting PMRGCAuk - lovely Jean supplies a wonderful information pack for a small fee.
Best of luck and don't give up!