I have recently been diagnosed with PMR (January 2012) I am a 47 year old female,and although it was a shock because I had no idea that the condition even existed I found it a relief to actually have a diagnosis as I was beginning to think I was going mad!!!
I was started on 20mg of steroids daily and I had to try and reduce these over a few weeks as soon as I did this,whammmm.....all the pain started creeping back in and life was neginning to become unbearable again. I was then put back up to the initial dose and I am just about to start on reduction again, something I am not looking forward to.
I find it very difficult to come to terms with due to my total lack of understanding of the condition and I really dont know what lies ahead but then again who does in life.
My whole lifestyle has been changed,I have had to attend Tribunals to determine that I have Limited Capability for Work and although I would far rather be working full time I could honestly say that I would never be able to do this and cope with this condition.
I just wonder if anyone else has any advice with working and dealing wth this condition