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Wegener's Granulomatosis discussions

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  1. Wegeners Diagnosed June 2006

    The onset of Wegeners for me was very fast [about 6 months to be falling apart from being fit and healthy ] January 2006 to June 2006

    Having read many of the ....

  2. Help with WG nose problems

    Hello to you all

    I thought I would post the following product information as I have found it of value:

    On my last visit to the ENT Consultant we disscussed ....

  3. I have recently been diagnosed with WG

    Hi everyone.

    I am 32 and a married Mum with a daughter of 13 months.

    My symptoms started last August whilst in the last trimester of my pregnancy. It started ....

  4. Blocked stent in lung - WG

    Had an endobronchial stent inserted in 1998. Worked fine until 2004 when started getting SOB again. Since then WG has flared up twice during 2 pregnancies and has ....

  5. wegeners granulomatosis

    I was diagnosed with WG about 6 years ago,i had problems with a blocked tear duct ,after 3 operations to sort this eye problem out(not successful) a biopsy was taken ....

  6. Wegener's granulomatosis

    I was taken very ill early this year, suffering from night sweats, high temperature, bloody discharge from nose including crusting, coughing up bloody sputum, body ....

  7. Wegeners Granulomatosis diagnosed June 2009 age 43

    My experience starts in Jan 2009 with a constant cough, ENT couldn't find anything and it got better, but followed with ear ache which developed further with excrutiating ....

  8. Miracle Nasel Spray (for me anyway)

    I had terrible nasal problems with bleeding, crusting and all the other nasty things that seem to be common. I was seeing a specialist every three months and why ....

  9. Diagnosed in Nov 2009

    Hi All

    i'm a 48yr old male in Ireland and was diagnosed with wegeners in Nov2009.... my journey prior to to being diagnosed was based/focused on the assumption ....

  10. Wegeners Question

    Hi

    Is it the medication that makes us wegeners sufferers so tired all the time? any opinions/advice appreciated

    thanks

    Mepper

  11. TOLD I HAD LUNG CANCER BUT IT WAS WEGENERS

    AFTER MANY MONTHS OF ILL HEALTH AND MY GP COULD NOT FIND OUT WHAT WAS WRONG WITH ME.IN MAY 2009 I WENT TO HOSPITAL BECAUSE I WAS COUGHING UP BLOOD THEY DONE XRAYS ....

  12. intro

    hi there hope u are all well, just wondering if the is anyone on here from yorkshire in england?? or if anyone knows of any support groups etc in the area?? i was ....

  13. quantities of medication

    My Mum has been suffering with her second time with Wegener's since July 2009. The medication quantity is holding her but not getting her better. The first time ....

  14. just been diagnosed April 2010

    I am a 38 year old married women and i have just been diagnosed after about 7 months of constant, what seemed like at the time, to be constant little illnesses.....now ....

  15. My wifes Experience

    In June 2009 my wife experinced severe joint and muscle pain. Red eye soon followed. The G.P.'s best guess was some arthritic condition and she was reffered to ....

  16. My life with Wegeners

    Hi to everyone suffering with this disease. I found out in April of 09 that I had this disease. It started with a nagging cough (only in the mornings). I was diagnosed ....

  17. Brother very ill with WG

    Hello, My brother is in hospital very ill with WG, he was diagnosed Dec 2009 he started treatment in January this year, he felt great after 1st infusions of cyclo ....

  18. Wegeners granulamatosis

    Since starting treatment of Cyclophosomide, prednisolone and other drugs I suffer from dizzy spells several times a day, sometimes they are so bad my legs give way ....

  19. Awaiting biopsy

    Hi ya I have had problems with mouth ulcers on side of Tongue and inside of the mouth the skin peeled of the side of the tongue, also inside my nose the lining would ....

  20. Wegeners Granulomatosis

    I have been trying to join this site for some time but whenever I do I get connstant messages saying I have entered something wrong.

    I just want to talk to people ....

  21. rash

    Have been gradually reducing prednisalone and I am down to 12.1/2 mg I started on 60mgs at the begining of march, I am now experiencing a rash all over my arms and ....

  22. Wegners

    My dad was diagnosed in April and like Angela's brother seemed to be doing ok. However, he is now going backwards and his body is so stiff he cannot move much. ....

  23. Never ending joint pains?

    Hi All, Married with 2 kids I was diagnosed 5yrs ago at 38. Had previously undergone 5 or 6 ear ops over the preceding 10yrs and a few ops to remove recurring infections ....

  24. Importance of diet in combatting WG & Rituximab

    Hi all, very interested to read this blog - thanks for sharing your experiences. My mother-in-law is in her 60's and has had WG for 3 years. It's taken a real toll; ....

  25. On medication but not doing well

    Hi and thanks for your posts,

    I have been started on medication and have gone from being on steroids only ay 40mg - felt great on this- then Methotrexate was ....

  26. coming off steroids

    Dear all,

    has had anyone had difficulties with withdrawal symptoms coming off steroids? I have had a bad year since mine were stopped, with dreadful pain in ....

  27. Just been diagnosed with WG

    Hi,

    I was diagnosed with WG 3 days ago. After months of very painful joints, I finally got an appointment with a rhematologist who carried out loads of tests ....

  28. wegeners diagnosed as lung cancer

    My husband was wrongly diagnosed with lung cancer and had a lobectomy for this. After the lobectomy and subsequent investigation of the lung it is diagnosed as ....

  29. Awaiting WG diagnosis

    Hi, Just turned 39 year old married father of four. Pre Xmas last year suffering with chest pains & a full MOT highlighted hyper-tension. For the last 8 months ....

  30. wergners granulomatosis

    i have just been diagnosed,with wg which has taken quite a long time .i have cvid immune deficency,and as a result ,i have now aquired wg.ive had numerous chest ....

  31. Wegeners granulamatosis diagnosed 6TH OCT 2007 AGE 38

    HI I WAS DIAGNOSED WITH WEGENERS JUST OVER 3 YEARS AGO AT THE AGE OF 38, I HAVE HAD ALL THE SYMPTOMS THAT GO WITH THIS DISEASE AND USE THE SAME MEDICATION AS A ....

  32. wegeners

    Have been having treatment for Wegeners for just over a year now and have now been diagnosed with pernicious anaemia so have had a course of B12 injections and will ....

  33. Full-blown Wegener's Granulomatosis

    Hi All...

    I've read a lot of stories here but wonder did anyone have experiences such as mine. I was hit by an express train called WG.

    I'm 53 and retired ....

  34. Husband in hospital - just diagnosed with Wegener's

    Hi all, my husband (39) was diagnosed with WG on Tuesday, and I was just researching on the internet when I came across this forum, so thought I would \"unload\", ....

  35. wegeners

    Hi everyone,just joined and amazed at the different types of medication used individually.i was diagnosed with wegeners in 2005.I was medically retired in 2000after ....

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