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Wegener's Granulomatosis discussions

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  1. Wegeners - Symptoms : Painful swollen feet and fingers dead - URGENT

    Wegeners attacked my nervous system with the above symptoms. I am keen to contact others who have or had the same problem. Scanning forums has been unsuccessful ....

  2. A year on and not much progress...

    Hi, i was diagnosed with WG last Feb. Now a year later, i dont' feel i am making much progress.

    In my case, i have not started ANY treatment for it. I am under ....

  3. I've had WG for 11 years, since age 32. I have set up a ...

    I've had WG for 11 years, since age 32. I have set up a local support group in Oxford, as part of the UK vasculitis group (previously The Stuart Strange Trust).

    [i:b5950c78d8]This ....

  4. How can I reach you to find out more about your support ...

    How can I reach you to find out more about your support group and your experience?

    Can you please tell me if there is anywhere in Scotland or in the UK at the momment ....

  5. Wegener's Granulomatosis

    sad I have had methotrexate cyclophosplamide,

    azalkioprine,and all have bad side afecs on me.I am fine in the day but at night i can not sleep for the pain i get ....

  6. I'm 45 with wegeners diagnosted this time last year

    What a roller coaster of a year, i was taken into hospital this time last year with a suspected heart attack, after being ill for quite some. after many many tests ....

  7. WEGENERS

    HI I WAS TOLD A YEAR AGO THAT I HAD WEGENERS AND STILL FEEL ALONE,MY PARTNER IS FANTASTIC.NO ONE TOLD ME ABOUT THE WEIGHT GAIN I WOULD HAVE.... I HAVE ALSO LOST ....

  8. Am I Really Ill?

    I was diagnosed in Jan 08 after many years (10) of uncertainty. It initially started 20 years ago when my left eye became blurred and the vessels became inflamed ....

  9. I was diagnosed with wegener's at 17

    i was diagnosed with wegenr's when i was 17 after being told for 6 months that i had crohns disease. the real diagnosis came as a real shock because it as extremely ....

  10. Wegener's

    :D [color=green:08ac7030c1][/color:08ac7030c1][size=18:08ac7030c1][/size:08ac7030c1]

    I have been diagnosed with W.G October 2008. However, the doctor reckons that ....

  11. me & my wegener's

    im a typical happy go lucky full of energy 16 yr old girl.....well i woz till i took realy ill, landed up in hospital, ulcers apearin over my body , a leg that woz ....

  12. Diagnosed with Wegener's October 2008

    Hi Do any of those who have this suffer with more problems during the winter due to the cold. I have found I have increasing cramps in my arm, feet and back is ....

  13. Help/Support available for WG patients & carers

    Hi all

    I have WG just like you, many symptoms and illnesses and finally told you have WG (Sept 06). I joined a local group online, it is great just to ask a ....

  14. Told I had Wegners November 9TH 2008

    After several months of recurring ear infections and chest problems I was finally sent for a chest x-ray. This showed damage to my lungs and was admitted to hospital. ....

  15. wegners has left me out in the cold

    my daughter has wegners has done since she was 11, she is now 13 still has lots of different things goin on like sore, runny nose bad ears hard hearing. she had ....

  16. diagnosed 3 years ago

    I was diagnosed 3 years ago after 2 months of sinus infections and 10 days on the heart ward having angiograms etc. my treatment consisted of chemo, steriods and ....

  17. my mothers wegeners

    hello all

    I have just sat and read all the posts of the people with wegeners and my heart goes out to you all. My beautiful mum was diagnosed in 2002 after numerous ....

  18. Eye Problems

    Was diagnosed with this disease in October 2005. It has been a very hard slog, I have had every symptom going except kidney problems (touch wood!!!). I am now ....

  19. where did his life go

    I have tried many many sites for patient stories on WG. I haven't found one like this in the U.S. but I am sure glad I found this one. The man in my life was diagnosed ....

  20. wegners granulomatosis

    I was diagnosed with WG in january 2008, this came to light after i had visited my GP (first time for several years) with a bad foot, which i was told at first it ....

  21. I was diagnosed with wegeners in nov 2007 aged 45.

    The symptoms began with recurrent ear infections , rapid pulse rate, blocked nose , blocked ears and hearing loss now and then.

    In October 2007 my health got worse ....

  22. wegeners

    hi everyone, i've had wg for 5 years now. in & out of remission as i am now, since september'08 & we're having probs trying to get me back in. my problem ....

  23. My experience of Wegeners

    ln March 2008 I was experiencing ear problems which then led to complete deafness in both ears. I was given numerous amounts of ear drops for ear infection which ....

  24. This is a hope for all of you..

    This is a predicament faced by one of my closest friends. She managed to receive treatments for an unexplained terrible headache in july- sep 2007. Then in November ....

  25. Personal experience of Wegeners

    %In 2008 I had a busy year, Working nightshift bringing up a 4 year old, pregnant, studying and to top it a all built a house. Had a beautiful boy with no problem ....

  26. On set of WG & more

    Hi to you all.

    I am 55 years old and up to the \"on set\" had always been healthy.I was diagnosed with WG in Feb07. When told my first remarks where ....

  27. WEGENER'S

    Hi, folks,

    My husband was diagnosed with Wegener's 3 years ago. He experiences bleeding into the skin, mainly on his arms and the backs of his hands. One of his ....

  28. 18 with wegeners

    Hello,

    I was diagnosed February this year. The previous december i went to the local GP complaining of pain on the side of my face. He told me i had a blocked ....

  29. Wegners Granulamtosis

    Hi, just found this site. I was diagnosed with Wegeners in October 2008, I had had painful joints from May 2008, struggling to do most things which is hard running ....

  30. Living with wegeners

    Hi All

    Just found this site , I was diagnosed with Wegeners approx 4 years ago. I was walking about for 9 months thinking i had a bad head cold after numorous ....

  31. Does a negative ANCA rule out diagnosis of Wegners

    Two years ago it was discovered that my CRP & ESR (inflamatory levels) were considerably raised. In this time I have had many different test to try and find ....

  32. Being a nurse, researcher, wife , mum and living with WG's

    I have been a passive on looker of this site for a few weeks now since a good friend mentioned it to me although I had come across it before in an earlier version ....

  33. wegners

    in 2005 whites of both eyes suddenly turned red, blinding headaches which rended me usless for a good four mouths, hated the light. Had to wear sunglasses all the ....

  34. Diagnosed in 2006

    After reading the other experiences I feel I have been let off lightly so far. My main symptoms are Granulomous stricture of the upper urethra for which I have a ....

  35. Medication side effects

    I was diagnosed with WG 4 years ago after suffering a catalogue of symtoms 9 months. My employer the DWP ( there's a joke ) even threatened to sack me after their ....

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