Hi, i was diagnosed with WG last Feb. Now a year later, i dont' feel i am making much progress.
In my case, i have not started ANY treatment for it. I am under ....
The symptoms began with recurrent ear infections , rapid pulse rate, blocked nose , blocked ears and hearing loss now and then.
In October 2007 my health got worse ....
Hi everyone,just joined and amazed at the different types of medication used individually.i was diagnosed with wegeners in 2005.I was medically retired in 2000after ....
I was taken very ill early this year, suffering from night sweats, high temperature, bloody discharge from nose including crusting, coughing up bloody sputum, body ....
Wegeners attacked my nervous system with the above symptoms. I am keen to contact others who have or had the same problem. Scanning forums has been unsuccessful ....
I have been diagnosed with WG and am on the usual medication.
WG attacked my nervous system. My feet are swollen and movement is painful. At night the swellings ....
Have been gradually reducing prednisalone and I am down to 12.1/2 mg I started on 60mgs at the begining of march, I am now experiencing a rash all over my arms and ....
I've read a lot of stories here but wonder did anyone have experiences such as mine. I was hit by an express train called WG.
I'm 53 and retired ....
I've had WG for 11 years, since age 32. I have set up a local support group in Oxford, as part of the UK vasculitis group (previously The Stuart Strange Trust).
My name's Ryan, and I was diagnosed with WG in Dec 2010. Rushed into hospital on Xmas day, of all days!
Since then, I've had a few ups and downs, ....
Two years ago it was discovered that my CRP & ESR (inflamatory levels) were considerably raised. In this time I have had many different test to try and find ....
I am still in shock, but write this less then 24hrs after being diagnosed with WG.
My GP and consultants knew a month ago, but i only found out yesterday after ....
i was diagnosed with wegenr's when i was 17 after being told for 6 months that i had crohns disease. the real diagnosis came as a real shock because it as extremely ....
My husband was diagnosed with WG in June 2011, started with ear infection in April and after several lots of anti-biotics was diagnosed with polymyalgia was ....
diagnosed in early july and i believe very early with this disease which i had never heard of it before! it manifested itself as an ear problem in mid may ....
I am making a tentative enquiry to find out if there are any support groups for this illness operating in central Scotland
Hi all, my husband (39) was diagnosed with WG on Tuesday, and I was just researching on the internet when I came across this forum, so thought I would \"unload\", ....
I was diagnosed with WG 3 days ago. After months of very painful joints, I finally got an appointment with a rhematologist who carried out loads of tests ....
The onset of Wegeners for me was very fast [about 6 months to be falling apart from being fit and healthy ] January 2006 to June 2006
Having read many of the ....
Have been having treatment for Wegeners for just over a year now and have now been diagnosed with pernicious anaemia so have had a course of B12 injections and will ....
Since starting treatment of Cyclophosomide, prednisolone and other drugs I suffer from dizzy spells several times a day, sometimes they are so bad my legs give way ....
HI I WAS DIAGNOSED WITH WEGENERS JUST OVER 3 YEARS AGO AT THE AGE OF 38, I HAVE HAD ALL THE SYMPTOMS THAT GO WITH THIS DISEASE AND USE THE SAME MEDICATION AS A ....
i have just been diagnosed,with wg which has taken quite a long time .i have cvid immune deficency,and as a result ,i have now aquired wg.ive had numerous chest ....
My experience starts in Jan 2009 with a constant cough, ENT couldn't find anything and it got better, but followed with ear ache which developed further with excrutiating ....
Hi, Just turned 39 year old married father of four. Pre Xmas last year suffering with chest pains & a full MOT highlighted hyper-tension. For the last 8 months ....
I have been trying to join this site for some time but whenever I do I get connstant messages saying I have entered something wrong.
I just want to talk to people ....
My husband was wrongly diagnosed with lung cancer and had a lobectomy for this. After the lobectomy and subsequent investigation of the lung it is diagnosed as ....
Hi to you all.
I am 55 years old and up to the \"on set\" had always been healthy.I was diagnosed with WG in Feb07. When told my first remarks where ....
Hi ya I have had problems with mouth ulcers on side of Tongue and inside of the mouth the skin peeled of the side of the tongue, also inside my nose the lining would ....
has had anyone had difficulties with withdrawal symptoms coming off steroids? I have had a bad year since mine were stopped, with dreadful pain in ....
AFTER MANY MONTHS OF ILL HEALTH AND MY GP COULD NOT FIND OUT WHAT WAS WRONG WITH ME.IN MAY 2009 I WENT TO HOSPITAL BECAUSE I WAS COUGHING UP BLOOD THEY DONE XRAYS ....
Hi and thanks for your posts,
I have been started on medication and have gone from being on steroids only ay 40mg - felt great on this- then Methotrexate was ....
I am a 38 year old married women and i have just been diagnosed after about 7 months of constant, what seemed like at the time, to be constant little illnesses.....now ....
Hi all, very interested to read this blog - thanks for sharing your experiences. My mother-in-law is in her 60's and has had WG for 3 years. It's taken a real toll; ....
My dad was diagnosed in April and like Angela's brother seemed to be doing ok. However, he is now going backwards and his body is so stiff he cannot move much. ....
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