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  1. poems syndrome

    hi my mum died of poems syndrome 16 years ago when i was just 18 with in a year of being diagnosed with the diesease my mother was in a wheelchair and had problems ....

  2. POEMS/Neorapathy

    Hi all,

    I am Tanya Matuny's husband and would like to know if any of you out there (females of course) ever had the Mirena IUD prior to being diagnosed with ....

  3. Looking for answers

    Hi, I was diagnosed with POEMS Syndrome about five months ago. This is all new to me and I just want to talk with someone, anyone that can share notes with me about ....

  4. re:poems syndrome

    I have already posted regarding my husbands illness which is POEMS syndrome.He had stem cell transplant in sept 2005 and he has improved a lot.Eventhough Drs predicted ....

  5. Thanks for connecting POEMS patients

    Thank you, Pt. UK for connecting some of us who live with this beast of a disease! I am so grateful to find a forum in which others have shared their experiences ....

  6. I have a friend who is in the ICU. She went in due to l...

    I have a friend who is in the ICU. She went in due to liver failure and was awaiting a liver transplant. After many let downs, finally the right liver arrived. ....

  7. Hi everyoneMy beutiful darling wife Tina-Marie Turrell,...

    Hi everyone

    My beutiful darling wife Tina-Marie Turrell,from Birmingham UK,was told by the Queen Elizabeth hospital in Birmingham back on july 3rd 2002 that she ....

  8. I am also diagnosed with Poems Syndrome.Became ill in 1...

    I am also diagnosed with Poems Syndrome.Became ill in 1996,had a stemcell transplant in 1997. Since then I improved bit by bit and now although disabled have a ....

  9. My husband is suffering from POEMS syndrome since 2003.h...

    My husband is suffering from POEMS syndrome since 2003.he got most of the symptoms mentioned in this site.He had few courses of chemo which showed improvement in ....

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