Pituitary Disorders

21 members E 11 recent discussions New discussion Join group Also known as Acromegaly

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  • Sheepcoat
  • pennymorelock
  • Guest

    Pituitary Apoplexy

    I am a 30 year old female. In 2008, I suffered pituitary apoplexy. I still can't believe I survived!!!! I had 2 children at the time and was still breastfeeding 2nd child when it happened. I'd had an extremely bad headache for about a week but just assumed it was a migraine until the pain was...

    < 2 replies _ 1 vote Last reply
  • lydia2013
  • sehaj
  • Toonend

    Acromegaly or not?

    In 1989 I was diagnosed with acromegaly and underwent transphenoidal surgery for the removal of the tumour. My GH readings before surgery were 34, I believe the normal is 3.4. My surgery was very successful and I did not require any radiotherapy. However, my GH readings dropped to 0.9 and I have been...

    < 0 replies _ 0 votes
  • vic07
  • firstcontact

    Hypopituitarism

    I have been referred to occupational health from work and I am worried about how they are going to regard my condition. I have been off work quite a lot and at the moment am suffering from a recurring trapped nerve in my lower back. My GP has referred me to physio but the appointment is not until April....

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  • Guest

    acromealy

    hi ,can i ask how long u guts waited for sugar intolarance hormone test!!!my husbund has the test in november ,it is now jan and he is still waiting for the hospital to send for him!! is this a long time,thanx shirley :?

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  • Guest

    acromegaly

    hi my husbund is awaiting results for acromegaly,he has all the symptoms but took a lot of pushing from us befor doctors would refer him to see a specialist,even the hormonr doctor ,said that his symptoms were becouse he was over weight and middle aged!! he dont have a tuma on his piturity gland!!!!...

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  • Shirley Samways

    Acromegaly

    I have suffered from extreme exhaustion since my diagnosis and subsequent op to remove tumour I am now taking lanreotide to block the growth hormone .I have been taking Q10 for 3 weeks and had an instant result I am able to keep my energy level up and feel a whole lot better. Patients with this illness...

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  • Guest
  • Guest

    Acromegaly memory loss

    hi my husband was diagnosed with acromegaly in 2007 he has had surgery and radiotherapy he has monthly injections and takes bromocriptine every day he still has some tumor that cannot be removed as it is to close to the optic nerves and carroted artery over the last few months he has become more forgetful...

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  • Guest

    acromagelay

    I am 33years old I was told I havehis condition 3 years ago they told I needed surgery, I refused because I never had of this condition but my symptoms got worse till I decide to do research about acromegaly I was able to recognize the symptoms big hands,that I hadto enlarge my ring mye feetl change...

    < 0 replies _ 0 votes
  • jeffharris
  • just another one

    acromegaly

    i have been diagnosed with acromegaly in january 2009, i have just received my first monthly injection of Lanreotide made me feel windy and gave me some lower abdomen pain, but i feel slightly better than i have for years. Ihave been suffering with different things for years i.e. carpal tunnel, headaches....

    < 1 reply _ 0 votes Last reply
  • Guest

    Acromegaly Injection problems

    Hi! To all New to this so hope this is in the right section. I could do with some help and hope there is someone out there that can help me. 12 years ago was diagnosed with Acromegaly and was put on 2 weekly injections. The same 2 nurses at my surgery alternatly did the injection in the rear end and...

    < 1 reply _ 0 votes Last reply
  • robal51

    Acromegaly Over 20 years and still kicking.

    I was diagnosed with Acromegaly over 20 years ago now. It was first spotted by my eagle eyed GP, when I was visiting him with some relativly minor ailment. My GP refered me to a rather elderly consultant at our local hospital. The consultant explained to me all about the problem, but told me that...

    < 0 replies _ 0 votes
  • Livvyoxo

    My Mum Has Acromegaly

    My Mum Was Diagnosed With Acromegaly Last Summer And Unlike 98% Of Cases, She Cant Have An Operation Because There Isnt Actualy A Tuma There. She Has Monthly Injections To Control It And I Think Theyre Going Well. Im Still Worried About Her Though sad Any Advice Or Help? x

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  • Guest

    Acromegaly post-operative hormone status

    hi everyone, My dad was diagnosed with acromegaly with a tumor 2cm. He had an operation which was successful. The tumor was totally cleared. But 1 month later he had his hormones tested. some hormone levels got lower but his growth hormone especially got higher than before he got the operation. Did...

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  • fred

    Acromegaly i have it to

    i found out in may 2007 that i might have acromegaly , now 2008 im waiting for my op , should be around march , i know most GP dont know much about acromegaly , but if my GP had not pushed the NHS i would of still been waiting ? but every one has been so helpfull ,

    < 1 reply _ 0 votes Last reply
  • JF

    Acro

    I am not good with computers. I think it will take me a while to figure out how to do this. So if I don't respond to someone it's because I don't know which button to push. Also I try to spend as much time outside so I am not on the computer that much. I thought it would be a good idea to...

    < 0 replies _ 0 votes
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