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Nephrotic Syndrome discussions

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  1. childhood nephrotic syndrome

    Hi, I have a 7 year old with this syndrome and wondered if anyone has a child of similar age that they would be interested in talking to my daughter?? I feel that ....

  2. Rexuximab infusion nephrotic syndrome

    Hi has anyone else got a child who is on retuximab infusions to treat nephrotic syndrome I would really like to talk to someone going through this thankyou

  3. My son was diagonised with nephrotic in 2000 aged 3. We ...

    My son was diagonised with nephrotic in 2000 aged 3. We did not know anything. Luckily for us the Doctor knew what he was looking for. We still have times when we ....

  4. I am a 41 years old woman and was first diagnosed with n...

    I am a 41 years old woman and was first diagnosed with nephrotic syndrome at the age of 7.

    I am a frequent relapser and was hospitaised 5 times as a child.

    I was ....

  5. my son is 3 and was diagnosed a year ago with nephrotic ...

    my son is 3 and was diagnosed a year ago with nephrotic syndrome he had a biopsy which showed changes that could become serious but at this time he is being treated ....

  6. Hello, im a 23 year old and had Nephrotic Syndrome since...

    Hello, im a 23 year old and had Nephrotic Syndrome since i was 2... from an early age i use to take anything up to 16 steriods a day which was a lot for a young ....

  7. Hi my name is Melissa and I am 27 years old. I was diag...

    Hi my name is Melissa and I am 27 years old. I was diagnosed with nephrotic syndrome in July of 2003. I started out with uncontrollable itching. Within a couple ....

  8. I have a 3 year old son with nephrotic syndrome. He was ...

    I have a 3 year old son with nephrotic syndrome. He was diagnosed with it last june(2005) after he caught chicken pox. As the pox cleared up he was left with swollen ....

  9. Hi my 12yr old daughter has just been diagnosed with NS....

    Hi my 12yr old daughter has just been diagnosed with NS.She has had a kidney biopsy and it shows slightly more than 'minimal change'.She is on 60mgs prednisolone ....

  10. Hi I have had Minimal Change Nephrotic Syndrome since I...

    Hi

    I have had Minimal Change Nephrotic Syndrome since I was 11, I am now 31. I had loads of relapses up until I was about 20 and since then I have only had 2 relapses ....

  11. HELLO. I AM NOW 25 AND WAS DIAGNOSED WITH NF AS A SMALL...

    HELLO.

    I AM NOW 25 AND WAS DIAGNOSED WITH NF AS A SMALL CHILD. WAS REALLY QUITE ILL AND WAS HOSPITALISED SEVERAL TIMES DURING THE WORST OF IT, TAKING VERY LARGE ....

  12. Hi i am a 26 year old and have had nephrotic syndrome fo...

    Hi i am a 26 year old and have had nephrotic syndrome for about 4 years - I’m interested in learning more about alternative medicines in relation to NS - could you ....

  13. i was diagnosed with nephrotic last september after feel...

    i was diagnosed with nephrotic last september after feeling really rough for about a month,i was hospitalised for 10 days after all the tests you can imagine and ....

  14. Hi I read your comments with great interest and would li...

    Hi

    I read your comments with great interest and would like to know more. I am 50 and was diagnosed with Minimal Change NS 5 years ago. I have had cyclophoslemide ....

  15. well i have been diagnosed wth nephrotic syndrome minima...

    well i have been diagnosed wth nephrotic syndrome minimal changes diseaase eversince i was 4 and now iam 21.i have been fighting pain al my life.and hope to win ....

  16. well i have been diagnosed wth nephrotic syndrome minima...

    well i have been diagnosed wth nephrotic syndrome minimal changes diseaase eversince i was 4 and now iam 21.i have been fighting pain al my life.and hope to win ....

  17. hey, i wanted to tell u about a device that can make ur ...

    hey, i wanted to tell u about a device that can make ur life easier.it is called the dupel and another is called relion.it is used for the administration of the ....

  18. My daughter has nephrotic Syndrome,

    My daughter is 4 years old and we discovered she had nephrotic syndrome on 3rd January 2006 since then she has had 3 replases. We are forever ringing the hospital, ....

  19. My 2 year old has nephrotic syndrome and has just relapsed

    My daughter Jessica was diagnosed with Minimal Change Jan 2007 and was treated with Prednisolone for 16 weeks starting off at 30 mg. She was off steroids for a month ....

  20. Nephrotic Syndrome

    Hi i am 36 year old female that just found out that i have Nephrotic Syndrome. Can anybody give me advice what can i eat. For example

    how much protein can i ....

  21. Can you eat anything when your protein is back to normal?

    After you are in remission, can you start eating what you want like, SALT for the taste of the food. Can anybody answer me that.

    Thank you

  22. 26 Years old and just relapsed for over 8th time!!! Steroids

    Hiya Guys im 26 year old female and am gutted as i have been so well for such a long time and now i have just had a relapse!!

    I have not long had a baby and ....

  23. Nephrotic Syndrome

    [i:70e25dc310][color=green:70e25dc310][/color:70e25dc310]I had nephrotic syndrom when i was 4, it was a fairly mild case but this doesnt mean it has effected tm ....

  24. nephrotic syndrome and cyclosporin

    Hi i have posted on here before about my history of Nephrotic Syndrome,

    After a course of Prednisolone in Jan 2008 i am now relapsing AGAIN....

    The dr's have decided ....

  25. Organ Donation

    I had Nephrotic Syndrome when i was 3 years old and was treated with Steroids. Fortunetly this treatment worked for me. I had regular appointments at the hospital ....

  26. my son has nephrotics

    My son had a hydrocel when he was 4 years old. We took him to hospital where they checked him over. They weighed him looked at his groin area which was swollen and ....

  27. nephrotic syndrome

    hi my daughter was diagnosed with ns may 2007 and since then i have been a nervous wreck.She is now 4 and was in remission for just over a year until last month ....

  28. nephrotic syndrome relapse

    yes she relapsed again! this time was worse cos she had more swelling around her eyes which was scary,protein was 4+ for 5 days so had to start steroids yet again ....

  29. nephrotic syndrome relapse number 4

    casey relapsed again 28th oct but this time had sickness and diarrohea, so was admitted to hospital for 2 days to be monitered because she`s had 4 relapses in 2 ....

  30. nephrotic relapse

    Hi, my son is four and was diagnosed with nephrotic syndrome 2 yrs ago. He was on 15mg preds and had protein for four days at 3+. Went to to have him checked and ....

  31. Alternative therapy for Nephrotic syndrome

    Hi all

    I am 22 years old female diagnosed with Nephrotic syndrome 3 years back. Right now I am on steroids but I am not happy with the way the treatment is going. ....

  32. How long to remission???

    HI all!

    My 13 year old daughter was diagnosed with NS last October 08 and is yet to experience remission... I was just wondering if anyone out there is/has been ....

  33. nephrotic syndrome

    hi i was wondering if anyone could tell me if ns is hereditary??

  34. Nephrotic Syndrome

    HI

    I have been diagnosed with Nephrotic Syndrome at the age of 45. I was at present suffering with a 6-week history of bilateral swelling around the ankle. I kept ....

  35. my dad

    my dad died of this disorder on 18 march 2010 it was a battle but we found out what it was a little to late he was in so much pain that it even hurt me i wish this ....

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