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Nephrotic Syndrome discussions

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  1. childhood nephrotic syndrome

    Hi, I have a 7 year old with this syndrome and wondered if anyone has a child of similar age that they would be interested in talking to my daughter?? I feel that ....

  2. Rexuximab infusion nephrotic syndrome

    Hi has anyone else got a child who is on retuximab infusions to treat nephrotic syndrome I would really like to talk to someone going through this thankyou

  3. No one has heard of nephrotic syndrome!

    One of the most difficult things about this illness is that no one has heard of it! I got sympathy due to the heart attack that was caused by my blood clotting but ....

  4. need a friend with NS!

    Hi, I d reallly like to have someone to talk to about nephrotic syndrome because for the last 3 years I ve been on and off treatment which is really getting me down! ....

  5. nephrotic syndrome and cyclosporin

    Hi i have posted on here before about my history of Nephrotic Syndrome,

    After a course of Prednisolone in Jan 2008 i am now relapsing AGAIN....

    The dr's have decided ....

  6. i was diagnosed with nephrotic last september after feel...

    i was diagnosed with nephrotic last september after feeling really rough for about a month,i was hospitalised for 10 days after all the tests you can imagine and ....

  7. Membranous glomerulonephritis at 37, FSGS as a child

    I am a 40 year old woman with no notable health problems aside from the nephrotic syndrome.

    At 10 years old I was diagnosed with primary focal segmental glomerulosclerosis ....

  8. I am a 57 year old woman diagonosed with nephrotic syndrome

    Aloha, I live on the island of Kaua'i in the U.S. I have nephrotic syndrome resulting from membranous nepropathy. No diagnosis for underlying cause at this time. ....

  9. Mycophenolate Mofetil to treat NS

    my consultant wants to treat my frequently relapsing nephrotic syndrome with a combination of prednisolone and mycophenolate mofetil.

    Does anyone have any experience ....

  10. nephrotic syndrome

    My son has nephrotic syndrome. I need to know please why he experience trouble of breathing when he is sleeping? does this disease has anything to do with the glands? ....

  11. HELP PLEASE

    I have a question, how much can you eat protein a day?

  12. 32 year old NS patient on Prednisolone

    Hi,

    i'm 32 now and have had NS since i was born. Up until 2003 i was only having one relapse every 2 years. Now i'm relapsing every 2 months.

    i'm currently ....

  13. Nephrotic Syndrome patient

    Dear Friends, My brother (Age-26) has Nephrotic Syndrome, We did kidney biopsy test on sep-2009 and Report are?

    Kidney biopsy shows 11 glomeruli. One glomerulus ....

  14. my dad

    my dad died of this disorder on 18 march 2010 it was a battle but we found out what it was a little to late he was in so much pain that it even hurt me i wish this ....

  15. Nephrotic Syndrome

    HI

    I have been diagnosed with Nephrotic Syndrome at the age of 45. I was at present suffering with a 6-week history of bilateral swelling around the ankle. I kept ....

  16. Alternative therapy for Nephrotic syndrome

    Hi all

    I am 22 years old female diagnosed with Nephrotic syndrome 3 years back. Right now I am on steroids but I am not happy with the way the treatment is going. ....

  17. nephrotic syndrome

    hi my daughter was diagnosed with ns may 2007 and since then i have been a nervous wreck.She is now 4 and was in remission for just over a year until last month ....

  18. Hello, im a 23 year old and had Nephrotic Syndrome since...

    Hello, im a 23 year old and had Nephrotic Syndrome since i was 2... from an early age i use to take anything up to 16 steriods a day which was a lot for a young ....

  19. nephrotic syndrome

    hi i was wondering if anyone could tell me if ns is hereditary??

  20. How long to remission???

    HI all!

    My 13 year old daughter was diagnosed with NS last October 08 and is yet to experience remission... I was just wondering if anyone out there is/has been ....

  21. nephrotic relapse

    Hi, my son is four and was diagnosed with nephrotic syndrome 2 yrs ago. He was on 15mg preds and had protein for four days at 3+. Went to to have him checked and ....

  22. Hi I read your comments with great interest and would li...

    Hi

    I read your comments with great interest and would like to know more. I am 50 and was diagnosed with Minimal Change NS 5 years ago. I have had cyclophoslemide ....

  23. nephrotic syndrome relapse

    yes she relapsed again! this time was worse cos she had more swelling around her eyes which was scary,protein was 4+ for 5 days so had to start steroids yet again ....

  24. nephrotic syndrome relapse number 4

    casey relapsed again 28th oct but this time had sickness and diarrohea, so was admitted to hospital for 2 days to be monitered because she`s had 4 relapses in 2 ....

  25. my son has nephrotics

    My son had a hydrocel when he was 4 years old. We took him to hospital where they checked him over. They weighed him looked at his groin area which was swollen and ....

  26. Organ Donation

    I had Nephrotic Syndrome when i was 3 years old and was treated with Steroids. Fortunetly this treatment worked for me. I had regular appointments at the hospital ....

  27. Nephrotic Syndrome

    [i:70e25dc310][color=green:70e25dc310][/color:70e25dc310]I had nephrotic syndrom when i was 4, it was a fairly mild case but this doesnt mean it has effected tm ....

  28. My daughter has nephrotic Syndrome,

    My daughter is 4 years old and we discovered she had nephrotic syndrome on 3rd January 2006 since then she has had 3 replases. We are forever ringing the hospital, ....

  29. 26 Years old and just relapsed for over 8th time!!! Steroids

    Hiya Guys im 26 year old female and am gutted as i have been so well for such a long time and now i have just had a relapse!!

    I have not long had a baby and ....

  30. Can you eat anything when your protein is back to normal?

    After you are in remission, can you start eating what you want like, SALT for the taste of the food. Can anybody answer me that.

    Thank you

  31. Nephrotic Syndrome

    Hi i am 36 year old female that just found out that i have Nephrotic Syndrome. Can anybody give me advice what can i eat. For example

    how much protein can i ....

  32. My 2 year old has nephrotic syndrome and has just relapsed

    My daughter Jessica was diagnosed with Minimal Change Jan 2007 and was treated with Prednisolone for 16 weeks starting off at 30 mg. She was off steroids for a month ....

  33. hey, i wanted to tell u about a device that can make ur ...

    hey, i wanted to tell u about a device that can make ur life easier.it is called the dupel and another is called relion.it is used for the administration of the ....

  34. well i have been diagnosed wth nephrotic syndrome minima...

    well i have been diagnosed wth nephrotic syndrome minimal changes diseaase eversince i was 4 and now iam 21.i have been fighting pain al my life.and hope to win ....

  35. well i have been diagnosed wth nephrotic syndrome minima...

    well i have been diagnosed wth nephrotic syndrome minimal changes diseaase eversince i was 4 and now iam 21.i have been fighting pain al my life.and hope to win ....

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