Henoch-Schonlein Purpura

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  • Jmbug 1

    Henoch schonlein Purpura both daughters.

    Hi, my daughter has just turned 4 was diagnosed with HSP 8 weeks ago. I had seen the rash before as i will explain later so was familiar with what was likely to occur. Fortunately so far my daughter is showing no protein in urine and has been relatively well in herself. She has suffered with swollen...

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  • Justine 1
  • tonnaboy64 1

    HSP. Flue Jab!!

    I am 72 years old and I have been suffering with HSP since the winter of 1993-4 . It started with severe pains in both elbows, and occured while I was driving home from Paris. by the time we arrived in UK. I was feeling very poorly with a temperature, much like flue symptoms. I did not see the rash until...

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  • Guest M
  • Guest M
  • Guest M

    hsp in children - doctors just guessing

    :?: my little girl is 3 and a half. She has had tummy pain for over six months. In June we noticed some small spots - minor - the tummy pain was backgound - she was just slightly off par..the doctor just said virus and that it would pass. He didn't add the pain to the spots. The pain seemed to be...

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  • Guest M

    Sam - had HSP when i was 15 (19 now)

    I was originally admitted with having a allergic reaction later found to have HSP, was in hospital for approx 4 days but the nurses often walked into my room tell me that there was food down the hall and then proceed to leave, unknowingly that i actually could not walk even with crutches. and then the...

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  • Guest M

    Sam - had HSP when i was 15 (19 now)

    I was originally admitted with having a allergic reaction later found to have HSP, was in hospital for approx 4 days but the nurses often walked into my room tell me that there was food down the hall and then proceed to leave, unknowingly that i actually could not walk even with crutches. and then the...

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  • Guest M

    18 months on!!!

    My 8 year old is still suffering from H.S.P, was told by a pedatrician at the local hospital earlier this year that hes been unlucky, was told back in 2008 that it would just last 6 weeks, still going for monthly urine and blood pressure tests at our docs, but what concerns me is hes never had a days...

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  • Guest M

    HSP

    I was first diagnoised with Henoch in May when i came back from Turkey with the rash all over my legs and extream swelling of my legs and arms. I did not feel unwell at the time. After my rash had gone (within 3 weeks) the pain came in my stomach and my kidneys which is now constant. It took nearly 3...

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  • Guest M
  • Kerry1975 1

    Henoch Shonlein Purpura

    I have had this disease since 2005. I am 35 years old now, and there is no sign of it going away, I dont know who said it was short term. I have now got kidney problems, there are days when my joints are that bad a struggle to get around. I havent had the rash for a few years, but was recently diagnosed...

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  • Guest M

    hsp

    hi, i had hsp when i was about 7(now 20), i was in hospital for several weeks, i had to have a wheel chair and couldnt talk for the first 4/5 days. Its very scary for the parents as when i had it they initially thought i had meningitus. just thought id share my experiance, as hsp ranges from very mild...

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  • Guest M
  • Guest M

    hsp with kidney involvement

    24 year old male had hsp over a year rash not come back but protein continuing to rise . under kidney specialists . trying to get blood pressure under 130 but still to high despite taking 2 differnt tablets 10mg. also had bowel involvement and costantly have to burp and pass wind. any other suggestions.

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  • Guest M

    henoch-schonlein purpura

    My son had the illness a year or so ago and the experience was horrilbe , he was only 3 at the time , but sufferd so badly ... the rash appeard first wich was worring enough but then he couldnt keep any food or water down .. doctors said it was nothing about 4 times before a male doctor said it could...

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  • sarahH 1

    my 6 month old has HSP

    we have just found out our daughter has hsp, it feels as though you are the only ones, the hospital says we are jjust monitoring her but it is so frustrating not knowing wha happens next. Is there anybody out there whos child has this at her tender age!! feel so helpless!1

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  • Guest M
  • Neir 1

    My 9 year old has HSP

    Awais is 9year old boy who has a life long condition called leukodysrophy which effects the muscules. He is wheelchair bound and has had hsp for the last 2weeks. Swollen knees ankles elbows hands lower back and left shoulder. He has the lot, voimiting headache and very bad tummy cramps for two days his...

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  • Guest M

    hsp

    my son had hap and it lasted for 1,5 years. It is imune disorder and the most important thing to do is to try to figure it out what causes it or what triggers it. i suspect on perservatives in food and stress. when we started to give him healthy food with out perservatives things started to get better....

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  • Guest M

    Henoch Scholein Purpura

    I have had HSP for 3 years or so now and i am 18 !! It started when i was on holiday , the sun brung out rashes on my hands and then my feet and then my arms . No one knew what it was, we guessed it was a Sun reaction . However as time went on things have only gotten worse. Now i get the Reoccuring...

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  • Guest M

    HSP

    Unfortunately my child developed HSP at the start of the year. When he had it I tried looking at experiences however the majority of scenarios I initially found, were from people who had been long sufferers of HSP and suffered greatly from them. I thought I should write this experience just because in...

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  • Guest M

    My 3 yr old son had HSP

    My 3 year old son was diagnosed as having HSP which was very scary. He had symotoms such as red rash, swollen ankles and feet, purple to black bruising and was very very tired out. If you'd like to talk you can Facebook me with a message- Sian Evans. I am 27 and living in Yate, South Gloucestershire....

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  • Guest M
  • Guest M

    4 years old son with hsp

    :cry: five days ago we rushed our four year old son to A&amp;E where we were told he had HSP. the hospital were wonderfull made our son comfortable on the ward and we got settled for the night at his bedside. we now have a nurse coming once a week to check on him and i have to check his wee in a...

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  • bekah1990 1

    Henoch-Schonlein Purpura

    I live in the United States, however I was unable to find alot of information from people here, so I am reaching out to try and get some answers. I was diagnosed with HSP back in January of 1998, when I was 7 years old. I was placed under the care of a kidney specialist because of damage to my kidneys...

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  • Guest M

    HSP - 4 year old daughter

    My little girl has HSP. My wife and I noticed the usual red dots on her backside one morning just before she started school. She went to school ( 3rd day) as usual and by evening the rash had spread and large lumps started to appear under her skin. I looked for some kind of reference to these rash marks...

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  • Guest M
  • Ross2452 1
  • Guest M

    Small patches of rash 5 years after suspected HSP

    Hi, I'm 29 years old and I had suspected HSP 5 years ago - suspected because the rash was from my feet to my neck rather than just on my legs and my blood samples went missing on the way to immunology and the doctor decided that because I didn't appear to be dying there wasn't any need to...

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  • Thomas, Lincs 1

    HS Purpura

    I am 68 years old and have recently been diagnosed with HS Purpura. Reading the above notes it appears that only(?) children get infected. It started with a rash around my ankles and a few pimples moved as far as my knees. Now I have one 2\&quot; dia sore on my right ankle and a 1\&quot; dia...

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  • Guest M

    SWOLLEN FEET

    MY SON HAD HSP WHEN HE WAS 5 YRS OLD , HE IS NOW 13 YRS OLD. EVERY YEAR HIS FEET SWELL AND GIVE HIM MUCH PAIN. I TAKE HIM TO THE DR'S AND EXPLAIN THAT HE HAS HAD HSP AND OF COURSE IT SEEM TO BE OF NO CONCERNS. HE IS PLAYING FOOTBALL RIGHT NOW AND CAN BARLEY WALK DUE TO THE PAIN AND SWELLING, I TREAT...

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  • U.S.A. 1

    HSP DX 3-3-2009

    Hi, diagnosed with HSP 3-30-2009 at 55 yrs old Rashed on lower legs stomach pain, blood in stool everythng else that goes alng with this issue. currently 0n 120 mg of prednisone everyothre day, water pill, fish oil. I am very weak. creatinne 3.0 cun 78 gfr 23.2 I am looking for anyone as old as...

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  • ainemurphy1984 1

    Two years on and HSP RETURNS!!

    sad sad sad 2 year ago I posted my story concerning HSP on this blog, after that I posted more about how HSP left me with high blood pressure and severe tiredness.. and now I write to say that I now have a relapse of HSP!! sad I came back from my holidays mid june to discover, a day later, that i again...

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  • Guest M

    HSP

    I've just found out I have HSP. It's not particularly bothered me, I just had a rash on my legs and it started to spread, some parts were quite tender and sore - they felt like bruises, so I went the hospital got a blood test and found out I have HSP. I didn't get anything to treat it and...

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