Henoch-Schonlein Purpura

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  • Guest
  • Guest

    hsp with kidney involvement

    24 year old male had hsp over a year rash not come back but protein continuing to rise . under kidney specialists . trying to get blood pressure under 130 but still to high despite taking 2 differnt tablets 10mg. also had bowel involvement and costantly have to burp and pass wind. any other suggestions.

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  • Guest

    henoch-schonlein purpura

    My son had the illness a year or so ago and the experience was horrilbe , he was only 3 at the time , but sufferd so badly ... the rash appeard first wich was worring enough but then he couldnt keep any food or water down .. doctors said it was nothing about 4 times before a male doctor said it could...

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  • sarahH

    my 6 month old has HSP

    we have just found out our daughter has hsp, it feels as though you are the only ones, the hospital says we are jjust monitoring her but it is so frustrating not knowing wha happens next. Is there anybody out there whos child has this at her tender age!! feel so helpless!1

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  • Guest
  • Neir

    My 9 year old has HSP

    Awais is 9year old boy who has a life long condition called leukodysrophy which effects the muscules. He is wheelchair bound and has had hsp for the last 2weeks. Swollen knees ankles elbows hands lower back and left shoulder. He has the lot, voimiting headache and very bad tummy cramps for two days his...

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  • Guest

    hsp

    my son had hap and it lasted for 1,5 years. It is imune disorder and the most important thing to do is to try to figure it out what causes it or what triggers it. i suspect on perservatives in food and stress. when we started to give him healthy food with out perservatives things started to get better....

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  • Guest

    Henoch Scholein Purpura

    I have had HSP for 3 years or so now and i am 18 !! It started when i was on holiday , the sun brung out rashes on my hands and then my feet and then my arms . No one knew what it was, we guessed it was a Sun reaction . However as time went on things have only gotten worse. Now i get the Reoccuring...

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  • Guest

    HSP

    Unfortunately my child developed HSP at the start of the year. When he had it I tried looking at experiences however the majority of scenarios I initially found, were from people who had been long sufferers of HSP and suffered greatly from them. I thought I should write this experience just because in...

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  • Guest

    My 3 yr old son had HSP

    My 3 year old son was diagnosed as having HSP which was very scary. He had symotoms such as red rash, swollen ankles and feet, purple to black bruising and was very very tired out. If you'd like to talk you can Facebook me with a message- Sian Evans. I am 27 and living in Yate, South Gloucestershire....

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  • Guest
  • Guest

    4 years old son with hsp

    :cry: five days ago we rushed our four year old son to A&amp;E where we were told he had HSP. the hospital were wonderfull made our son comfortable on the ward and we got settled for the night at his bedside. we now have a nurse coming once a week to check on him and i have to check his wee in a...

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  • bekah1990

    Henoch-Schonlein Purpura

    I live in the United States, however I was unable to find alot of information from people here, so I am reaching out to try and get some answers. I was diagnosed with HSP back in January of 1998, when I was 7 years old. I was placed under the care of a kidney specialist because of damage to my kidneys...

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  • Guest

    HSP - 4 year old daughter

    My little girl has HSP. My wife and I noticed the usual red dots on her backside one morning just before she started school. She went to school ( 3rd day) as usual and by evening the rash had spread and large lumps started to appear under her skin. I looked for some kind of reference to these rash marks...

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  • Guest
  • Ross2452
  • Guest

    Small patches of rash 5 years after suspected HSP

    Hi, I'm 29 years old and I had suspected HSP 5 years ago - suspected because the rash was from my feet to my neck rather than just on my legs and my blood samples went missing on the way to immunology and the doctor decided that because I didn't appear to be dying there wasn't any need to...

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  • Thomas, Lincs

    HS Purpura

    I am 68 years old and have recently been diagnosed with HS Purpura. Reading the above notes it appears that only(?) children get infected. It started with a rash around my ankles and a few pimples moved as far as my knees. Now I have one 2\&quot; dia sore on my right ankle and a 1\&quot; dia...

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  • Guest

    SWOLLEN FEET

    MY SON HAD HSP WHEN HE WAS 5 YRS OLD , HE IS NOW 13 YRS OLD. EVERY YEAR HIS FEET SWELL AND GIVE HIM MUCH PAIN. I TAKE HIM TO THE DR'S AND EXPLAIN THAT HE HAS HAD HSP AND OF COURSE IT SEEM TO BE OF NO CONCERNS. HE IS PLAYING FOOTBALL RIGHT NOW AND CAN BARLEY WALK DUE TO THE PAIN AND SWELLING, I TREAT...

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  • U.S.A.

    HSP DX 3-3-2009

    Hi, diagnosed with HSP 3-30-2009 at 55 yrs old Rashed on lower legs stomach pain, blood in stool everythng else that goes alng with this issue. currently 0n 120 mg of prednisone everyothre day, water pill, fish oil. I am very weak. creatinne 3.0 cun 78 gfr 23.2 I am looking for anyone as old as...

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  • ainemurphy1984

    Two years on and HSP RETURNS!!

    sad sad sad 2 year ago I posted my story concerning HSP on this blog, after that I posted more about how HSP left me with high blood pressure and severe tiredness.. and now I write to say that I now have a relapse of HSP!! sad I came back from my holidays mid june to discover, a day later, that i again...

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  • Guest

    HSP

    I've just found out I have HSP. It's not particularly bothered me, I just had a rash on my legs and it started to spread, some parts were quite tender and sore - they felt like bruises, so I went the hospital got a blood test and found out I have HSP. I didn't get anything to treat it and...

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  • Guest

    7 yr old daughter with hsp

    I was so glad to find this web site with others posting their stories about this. We were told our 7 year old daughter has hsp last Friday and we are struggling through it. She told me her knee hurt Thursday afternoon and I didn't see anything unusual so I just thought maybe she twisted it. Later...

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  • mr s.evans

    my five year old and hsp

    hi i.d like to tell of how hsp showed its self in my little girl it first started with glands swelling up so we seen the doctors and as you.d expect it was just her body fighting off some thing so we left it at that then about 5 days later she started been sick any thing that went in came back out in...

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  • Guest
  • Guest

    He's only 11

    I am a step mom to a 11 year old boy. About two in-a-half weeks ago my son came home from the weekend with his friends. Me and his dad asked him how was his weekend he said it was okay. Then he said dad look at my legs i don't know what it is! He left his pant leg and from his ankles mid way up...

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  • Guest

    I was 20 years old when i got HSP

    eight and a half years ago, i was rushed into my local hospital with suspected HSP and kidney failure. I was 20 years old, and had never heard of the disease. Neither have most of the doctors i have seen. My condition started with the rash and the abdominal pains. my GP took a urine sample and their...

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  • Guest

    HSP

    I had this disease about 5 years ago, and is the most worst experience of illness i have ever conflicted with. It all started with when i started to get these red spots all over my legs and as the days went by they started to turn into purple bruises, and some started to bleed and also incurred aching...

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  • Guest

    hsp

    my 9 yr old son has this since last fri and we went to another hospital and they say he has hsp. the only syptom not got yet is stomach or headache but every where has swollen then go's down. at the moment he's foot and back leg and his hand is hurting and lower back pain. doc's have said...

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  • sarah green

    my 4 yr old daughter has this

    my 4 year old daughter has this condition, it started on monday 13th april she started complaining her legs hurt, i looked and saw like insect bite marks, then she started walking with a limp and shuffleing her feet, i looked at her legs and at the back of her knees bruising started to appear the insect...

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  • Guest
  • Guest
  • Guest

    HSP - 20/M

    (20/M/Canada) So here's a quick summary of my experience I have always been very active when it comes to exercises and sports. During the winter and spring of 2007, when I was 18, I had been training 5 days a week for track (sprints). On top of that, eating completely healthy and watching my diet....

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  • Guest

    hsp

    I too have HSP at he age of 35, I have had this disease for 4 years. I have been on azathiprine for over 12 months ans still get a re-ocurring rash probably every 2 - 4 weeks, which is unsightly. I start with a cholic pain in my abdomen and get really tired, then you can guarantee within 3 days the...

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  • crazycoates

    4 year old daughter had HSP in Feb. 2008

    My daughter who will be 5 this May had HSP last February. It started out with a high fever then she broke out with the rash, had pain in ankles, knees and also tummy pain. My doctor referred us to a pediatrician who then after tests and many questions diagnosed her with HSP. She had to have follow...

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