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Hemifacial Spasm discussions

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  1. MVD surgery 8 days ago

    I am a 54 year old man living in North London, who was diagnosed with hfs about 5 years ago. I had botox treatment for about 4 years, the first couple of years with ....

  2. HFS and MVD

    Hi there, I have suffered from HFS for about 9 years. In Nov 2007 I underwent MVD and the spasms did slow right down, even to the point that I could go a whole ....

  3. Dysport

    Does anyone have any experience of Dysport? I know there are some differences between this and Botox (molecule size and more tendency to 'spread'?) but my Consultant ....

  4. hemi facial spasms

    hi

    my name is chris, im 33 and have been suffering with the spasms for the last 5 year

    when my spasms arnt that bad it can be something from a bit of twitching ....

  5. Getting a diagnosis

    My journey to diagnosis has been a long one.

    I first complained to my GP of twitching below my right eye and was dismissively told it was stress. I went away ....

  6. Anyone ever tried medical marijuana for relief of HFS ?

    Has anyone on this forum tried the medical marijuana route through your doctor?

  7. Remitting Hemifacial Spasm - surgery or not?

    Wonder if anyone else experiences long remissions from their HFS? I can sometimes get up to 3 months off before it comes back and this is bliss. I have been offered ....

  8. Spasm-free post-MVD surgery?

    I have undergone mvd surgery just over 6 weeks ago to rid of my left-side hfs but the spasms are still present to date. I am not sure if they would disappear eventually ....

  9. Hemifacial spasms

    Hi my name is Chris, I'm 42 years and live in North Somerset. I have suffered from rightside facial spasms for 2 years now. In the last 2 months the spasms have ....

  10. Facial Spasams

    Hi i am 19 years of age coming 20 in may i have had facial spasms from May 2010 I got treated with Lyrica two times a day 75mg, Diazepam 5mg 3 times a day and Dosulepin ....

  11. hemifacial spasm

    I have found my symptoms quite embarrassing. I work with teenagers and i go to the gym and I find my left eye closing and my cheek twitching. It also happens when ....

  12. medication

    I've had HFS for a few years now and am seen regularly by a consultant at the local hospital. He has tried numerous different medications but none have worked. I've ....

  13. hfs

    Hi

    I'm a 61 year old female I've had hfs for about 18 months, I still work and wonder if the computer I use daily is not helping matters. I have had botox and this ....

  14. Physical symptoms after HFS

    I have only just put a name to this horrible condition I seem to be experiencing. Can anyone tell me if it is usual to feel so rough after a bout of spasms? I have ....

  15. Confused!

    Hi, so glad to read these coments as I've felt so isolated with HFS. My symptoms have built up over the past 5 years and have been having botox for 9 months now. ....

  16. an answer at last

    after spending the last 2 year wondering should i or shouldnt i have the surgery a well qualified doctor at the hospital said to me... \"ive seen worse conditions ....

  17. tegretol retard

    hi ive recently been diagnosed with hfs and the hospital are in the process of writing to my doc to prescribe me with tegrewtol retard. has anyone experienced taking ....

  18. Hemifacial spasms...

    Hi, my name is Kelly and I am a 23 year old female. I started having minor squinting in both eyes when I got anxious, it was almost like a reflex. This was a year ....

  19. possible cause

    hi...the results of my mri scans showed a blood vessel touching a nerve just below the brain, it is the nerve which controlls the left hand side of the body in my ....

  20. Hello - my case

    Hi

    Firstly I'd like to say that it is comforting and helpful to hear from people with the same condition, thanks for sharing your experiences. I am a 41 year ....

  21. HFS

    I have had HFS for a couple of years, but my neuro said Botox for life - no other option. I knew about MVD thanks to Dr Google, but thought maybe too many risks...just ....

  22. Support Group for Hemifacial Spasm sufferers?

    Hi there,

    I've had Hemifacial Spams for two years now. They can get so bad the whole of my face is pulled to one side making talking and eating difficult. It's ....

  23. hemifacial spasms

    hi...im a 31 year man and my spasms started in my early 20,s, at first it was just the odd twitch every couple of months and has got worse over the past years to ....

  24. Hemifacial Spasm

    I have had a right side hemifacial spasm for nearly 4 years (starting at the age of 45) and it is starting to get me down. I have had regular botox injections for ....

  25. post op

    i had surgery in 2002 for hfs and it went instanty.i woke up and thought

    i had died and gone to heaven,after suffering for nearly 6 years and goodness knows how ....

  26. Hemifacial spasms

    I hate it its driving me mad. It seemed to slow down for a few weeks and I thought maybe it had finally come to an end....spoke to soon its back with a vengence ....

  27. DYSTONIA

    I have some hemi-facial spasms (just started) when stressed or tired and after exercising. Also eyes close slightly, but its the right arm tremor and head rotation ....

  28. From what I have read botox can only give temporary reli...

    From what I have read botox can only give temporary relief and some nasty side effects. I so know how you feel though. I have experienced it all, now I am not quite ....

  29. My spasm started under my left eye. At first I thought i...

    My spasm started under my left eye. At first I thought it was tiredness and stress, or maybe Parkinsons. Eventually I went to my GP who referred me to the Consultant ....

  30. Mine started 2 years ago with just a little twitch in my...

    Mine started 2 years ago with just a little twitch in my right eye. I went to the optitions and he just said it was a bit of eye strain and the new glasses would ....

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