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Haemochromatosis discussions

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  1. Living with it!

    Hi all,

    I have a bit of a long winded story, but would love any thoughts or inputs that anyone has…..

    I am a 32 year old female. I was diagnosed last december ....

  2. hypovolemic shock and abdominal pains

    Hi,

    I have suffered from haemochromatosis for 13 years. I have severe abdominal pains and take amitriptyline for the pain. Unfortunately this only dulls the pain. ....

  3. Is it worth testing further for haemochromatosis in this unclear case?

    I have suffered from chronic fatigue, depression and mood swings for a few years and have osteoporosis, occasional heart palpitations and eczema. I've seen a lot ....

  4. Hemochromatosis - What are the chances I have it?

    Hello All,

    I am a 25 year old Male from Ireland (both parents are Irish) and I recently attended the doctor because I found two lumps, one under each armpit (one ....

  5. haemochromatosis diagnosis

    i have suffered really bad for 14 yrs with tiredness and nearly all symptoms i have seen regards this disease .i have been told i have chronic fatigue .i asked for ....

  6. haemochromatosis and hair loss

    Hi

    I am 66 year old female and have hereditary haemachromatosis found a year ago for which I receive venesections. I never had any symptoms at all and now blood ....

  7. Haemochromatosis and Raynauds Disease

    This is firsttime I have been on this site I am59 yr old female I have had digestive problems for over 30 yrs joint and fatigue problems for just as long despite ....

  8. Iron Overload

    Hi,

    I am trying to get people to help me create awareness of this disease as I have been left with the most awful pain even after blood letting. My symptoms have ....

  9. Ferritin level increase even after venesection

    I was diagnosed with Haemochromatosis earlier this year and began venesections in July. My ferritin levels came down from over 4000 to 2100 by end of September- ....

  10. symptoms

    Hi All,

    I'm 29 and have recently been diagnosed with haemochromatosis in march and have just had my 3rd vene. My symptoms seem to be fatigue and anxiety mainly. ....

  11. Haemochromatosis diagnosis help needed

    My partner seems to have many of the symptoms of haemochromatosis but I wonder if anyone can help with diagnosis? He has had numerous blood tests but I am assuming ....

  12. Blood on toilet paper after bowel movement

    Hy all, I am very worried and looking for some advice! I am male 37 years of age. In may this year I experienced some urgency in bowel movement and mucus whilst ....

  13. Haemochromatosis and the feeling of being on your own

    I know I am having endocrine system problems. My thyroid was removed when I was 27, I have no ovaries and yet because I am termed menopausal I cannot get my GP to ....

  14. Hi again Well I have got my results back and I am homoz...

    Hi again

    Well I have got my results back and I am homozygous (carry 2 genes) for c282y gene mutation. Since then I have had another blood test (after having donated ....

  15. haemocromatosis

    hi there i was told about a year ago i had it, for years i had been told i drank too much, i do binge drink about twice a month, the rest of the time i am tee total.a ....

  16. Medical Fraternity

    I have been diagnosed as having hereditary haemochromotosis (3200) and have had four venisections. I feel excessively tired during the afternoons, much more so ....

  17. How long after a confirmed diagnosis should plebotomy start

    :? My husband was diagnosed with Haemochromotosis approx 4 weeks ago he is waiting to see a specialist in the meantime we don't have any information about diet or ....

  18. haemachromatosis

    Hi there. I am 56 and only found out I had the above 18 months ago just by chance. I have decided through past experience that you have to manage this blood disease ....

  19. The waiting is terrible

    My husband is waiting to fnd out exactly what is to be done. In December his doctor advised after several blood tests that she was 90% sure he had Haemochromatosis. ....

  20. RE TRAVEL INSURANCE

    HI ANYONE HAD TROUBLE GETTING TRAVEL INSURANCE WITHOUT BEING LOADED PLEASE LET ME KNOW OF ANY COMPANIES THAT DON'T THANKS

  21. Celtic Curse, Lazy Disease, Juvenile Hemochromatosis Patient

    I, after about 8 years of Depression, Chronic Fatigue, Extreme Palor, No Sex Drive, Body Hair Loss, Heart Failure and Liver Cirrosis was finally diagnosed with Juvenile ....

  22. I'm not a hypochondriac!

    I'm 37 years and female and have been diagnosed with heamochromatosis. For years I have been complaining of weakness, lethargy, general malaise, chronic pains in ....

  23. Heamachromatosis

    Male age 33 recently diagnosed. Had my first venesection yesterday. Absolutely nothing to worry about giving the blood.

    I had raised lft results and after two ....

  24. I am 16 year female and after my aunty going to the doct...

    I am 16 year female and after my aunty going to the doctors about very bad arthritis (she was 40) the doctor who had been on a course (and Haemochromatosis was luckily ....

  25. Hello, im a fortyfive year old female who has just found...

    Hello, im a fortyfive year old female who has just found out that my mother and her brother have both been receiving treatment for this condition. i am sure that ....

  26. Hi all My name is Catherine, 47, Female living in Canbe...

    Hi all

    My name is Catherine, 47, Female living in Canberra Australia. I went to the Doctor last Saturday to see if I was going through menopause (I had a hysterectomy ....

  27. I am a fifty year old female and was diagnosed with HH i...

    I am a fifty year old female and was diagnosed with HH in December of 2005. I am homozygous for C282Y gene mutation. It took me two months six doctors and surgery ....

  28. I am a 64 year old male who has been lucky enought to ha...

    I am a 64 year old male who has been lucky enought to have been healthy all my working life, two years ago I was found to have high blood pressure and I started ....

  29. I was diagnosed with Haemochromatosis in Mar 04 after 1 ...

    I was diagnosed with Haemochromatosis in Mar 04 after 1 of my uncles passed away with Diabeties. Of the 4 male members of my family that have been tested, all have ....

  30. Further to my last e-mail I received word from the hospi...

    Further to my last e-mail I received word from the hospital consultant that she would like to see me again in 6 months time, I thought this was far too long and ....

  31. I am a 48 year old male that's found out i have HH. I fo...

    I am a 48 year old male that's found out i have HH. I found out only this last 18 months that i have it. I used to be a blood donor but now that my liver is not ....

  32. I am a 72 year old female with HH - I have two children ...

    I am a 72 year old female with HH - I have two children with HH out of 5. I have what is known as the bronze fist or iron fist. Your articles are very interesting. ....

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