- Posted 2 June 2013
Hi, following my last comment I was also wondering if anyone had tried or has a hearing aid following surgery? I am thinking of getting a digital hearing aid that ....
I was first diagnosed with cholesteatoma seven years ago. My specialist has tried 3 times to completely cure me of the condition using the wall up procedure but ....
My son, who is turning 15 years old soon, has had problems with his ears virtually since birth and has now had 2 cholesteatomas removed. My question is, his consultant ....
I am 17 and had a radical mastoidectomy last November whilst doing my A Levels. I had been visiting the ENT clinic since the age of five and have always had hearing ....
Found this website and thought I'd share my story with you. Unlike a traditional story, there's not yet an ending but I feel tantilisingly close to one.
It all ....
Our 7 year old girl has just been diagnised with cholesteatoma. We have been worried constantly. Please someone help us. We are looking for a good surgeon for the ....
I was diagnosed with Cholesteatoma yesterday and i have my scan in 2 weeks time.
I've looked up the disease and am now very scared.
I can't hear at all out of ....
hello all, last Christmas I got diagnosed with a cholesteatoma in my left ear After years of being in aand out of hospital with numerous infections and bleeding ....
I was diagnosed with Cholesteatoma 5 years ago. The diagnosis tooks so long, I lost hearing and balance in my left ear. The process was quite gruilling, the worst ....
my son has recently been diagnosed with his horrible condition after many years of visiting ent consultants and several operations. Could any one recommend a good ....
Seven months ago my sixteen years old son had a large Cholestatoma removed from his left ear. The op was 6 hours. The cholestatoma was 2 mm from the facial nerve. ....
I have had drainage from my ear for 2 years, after having various docs take a look, numerous sprays, drops and antibiotics, CT scan plus surgery to look at my ear ....
i have had cholesteatoma for over 20 years now, im so fed up of saying what or sorry i cant hear you....i havent even had it checked for over 4 years cause nothing ....
hi, i have had a cholesteatoma three times now and was wondering if it was hereditary? as my little girl has had some hearing problems (only minor) but hoping that ....
My first child had surgery for cholesteatoma aged 3yrs,(wall down) with no further surgery or complications. My second child had surgery sept 09' (wall up)aged 11 ....
My name is Chris and in Oct of last year (2009) I had very bad pain in my right ear and started to get some foul smelling ooze from my ear.
When I visited ....
I have been visiting ENT for nearly ten years been taken off their books twice and refered to another dept. in the last year ive had 2 scans, one of them MRI and ....
I just wanted to share my experience as a parent of an 8yr old with this condition. My daughter was diagnosed last year with this and so far she has had 3 ops and ....
When my 14 year old son was diagnosed with cholesteatoma last year, I rushed home & searched the internet for information. I found a very good site that explained ....
I had a radical mastoidectomy for a cholesteatoma in my right ear forty years ago at the age of eleven. My sixteen-year-old son has just returned from hospital ....
:cry: My son has just had a 7 hour op to remove his Cholesteatoma, he also has lost the bones and ear drum in the inner ear, this is my sons third operation in 3 ....
Does anyone feel the same?
Have had 4 c'toma ops including rebuilding of the inner ear bones. Nothing seems to work. Constantly in pain and suffering lousy tinnitus ....
I started as a young girl.Found the first one at twelve was removed at 15.There were 7 to follow ,with an added one to replace my ear in the correct postion.The ....
My first child was diagnosed with cholesteatoma at 3 yrs of age, it was large and had caused a lot of damage so reconstruction was impossible, he now uses a hearing ....
Hi, I have recently been diagnosed with one of these lovely things.
I am 32 and have been suffering from ear infections for the last 5 years, it was only recently ....
I'm 24 and have had a Cholesteatoma since i was 10, altogether i think i have had about ten operations its hard to remember! i have started to realize that there ....
I have recently had a large Cholestatoma removed from my left ear. After being told by 2 doctors I had the condition a 3rd decided I didn't and cancelled my scan.
I had lots of problems with my left ear, it was always going deaf but often I could hold my nose and blow this would ‘clear’ the blocked feeling and I could hear ....
Two years since my mastoidectomy.My biggest problem is my tinnitus.It has got to an extreme level.My hearimg aid does help, but when i take it out its like uncorking ....
Hi Im the mother of a 24 year old lad with a mental disability.He has just been diagnosed with a Cholesteatoma after many foul smelling ear infections.Its difficult ....
hello everyone , well i feel for you all i have sufferd with cholesteatoma for many years and i have had five opps in the past five years .
they discoverd ....
Really pleased to have found this website, even though my son has had cholesteatoma twice.
My little boy was 5 when he was diagnosed with this awful disease. ....
My daughter who is 16 has just had her third mastoidectomy to remove a cholesteatoma. Has anyone else found that it keeps recurring, because I feel we were very ....
I feal a bit of a fraud as I have few of the classic symtoms of cholesteatoma but this was the diagnosis I was given a few days ago. I did suffer persistant ear ....
It is nice to share and read that we are not alone , my son`s experience has been shared before , headed cholesteatomer and it is very hard as a perant of a child ....
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