Hi. I posted here a few years ago after having had a biopsy and a diagnosis. I was reluctant to use the steroid cream that was prescribed to me (mainly because of the long term thinning of the skin) and began to research ways of managing my condition without using the cream. Unable to find much help on the internet for LS itself, I began researching auto immune diseases as it is thought that LS is probably an auto immune condition. I found a cream used mainly by arthritis sufferers called CMO Cream (Cerasomal-cis-9-cetylmyrisoleate - I hope I have got that right!) but it is thought to help all sorts of auto immune conditions. I began using that twice daily and found that it really helped. My body had begun to fuse together and slowly but surely it unfused. I then started using it once a day.
Much later, I read about the benefits of propolis for auto immune diseases. Propolis is produced by bees to protect their hives and is mainly known for its antibiotic-like properties. However, it can also boost the immune system when it needs boosting and slow it down if it is over active. I started taking one propolis tablet a day. Propolis also comes in a cream which is great for cuts, burns, etc. I started using that alongside the CMO cream and both have been amazing. I still need to use something once a day or my symptoms come back but I have never resorted to steroid creams.
I went back to my consultant after 2 years just to check that she was happy with how I was managing the condition. She was. She found a small area that I had missed with the cream and told me to direct the CMO cream there. She said to come back in another 2 years and hoped that next time, there would be no LS left for her to see!
I would also like to say that I have also found that eating too much sugar does cause flare-ups.
When first dignosed, I thought that this was going to change my life but now I hardly remember that there is anything wrong with me. It has not affected my life in any way except for the inconvenience of having to apply a cream at night - something I am happy to live with.
I know that alternative medicines are not for everyone but just wanted to share my experience for any like-minded sufferers. Sue