Patient Support : Children - medical conditions Category
- Action Duchenne
- Action for Sick Children (Scotland)
- ADDISS
- Adrenal Hyperplasia Network
- Afasic
- Aid for Children with Tracheostomies
- ALD LIFE (adrenoleukodystrophy and adrenomyeloneuropathy support)
- Alström Syndrome UK
- Anorchidism Support Group
- ASBAH - Association for Spina Bifida and Hydrocephalus - ASBAH
- Association for Glycogen Storage Disease (UK)
- Association of Young People with ME
- ATR-X Support Group
- Barth Syndrome Trust
- Batten Disease Family Association
- Beckwith-Wiedemann Support Group UK
- BEES - Bladder Exstrophy Epispadias Support
- Ben Hardwick Fund (primary liver disease)
- bibic - British Institute for Brain Injured Children
- Bladder Exstrophy Family Association
- Bobath Centre for Children with Cerebral Palsy
- Breathe On UK
- Brittle Bone Society
- Capability Scotland
- Cardiomyopathy Association
- Caring Matters Now (Congenital Melanocytic Naevus)
- CCCA - Children's Chronic Arthritis Association
- Child Growth Foundation
- Childhood Eye Cancer Trust
- Children with Leukaemia
- Children's Heart Association
- Children's Heart Federation
- Children's Hospices UK
- Children's Kidney Trust
- Children's Liver Disease Foundation
- Children's Mitochondrial Disease Network
- CLAPA - Cleft Lip and Palate Association
- Climb - Children Living with Inherited Metabolic
- CLubfoot.co.uk
- Cohen Syndrome Support Group
- Congenital Adrenal Hyperplasia Support Group
- Congenital CMV Association
- Contact a Family
- Costello Syndrome Support Group
- Cri du Chat Syndrome Support Group
- Crohn's in Childhood Research Association - CICRA
- CWAC - Children with AIDS Charity
- Cyclical Vomiting Syndrome Association
- Cystic Fibrosis Trust
- Dancing Eye Syndrome Support Trust
- DebRA (Epidermolysis Bullosa Support)
- Down Syndrome Education International
- Down's Heart Group
- Down's Syndrome Association
- Down's Syndrome Research Foundation
- Down's Syndrome Scotland
- Duchenne Family Support Group
- Dysautonomia Society of Great Britain
- Dyspraxia Foundation
- dysTalk
- Ear Foundation
- Ebstein's Anomaly
- Ectodermal Dysplasia Society
- Epilepsy Action
- Erb's Palsy Group
- ERIC - Education & Resources for Improving Childhood Continence
- Evelina Children's Heart Organisation
- Eyeless Trust
- FASD Trust
- Foetal Alcohol Syndrome Aware UK
- Fragile X Society
- Friends of Landau-Kleffner Syndrome
- FSH Muscular Dystrophy Support Group
- GEEPS - Gastroschisis Exomphalos Extrophies Parents Support
- Gift - The Children's Transplant Charity
- Glanzmann's Thrombasthenia Support Group
- Goldenhar Family Support Group (UK)
- HCPT - The Pilgrimage Trust
- Headlines - Craniofacial Support
- Heartbeat Northern Ireland
- Heartline
- Hemi Help
- Hirschsprung Disease UK
- Hirschsprung's & Motility Disorders Support Network
- Homes Caring for Autism Ltd
- Hyperekplexia Contact Group
- James Stewardson Research and Welfare Trust for Children with TPI
- Jennifer Trust for Spinal Muscular Atrophy - The
- Joint Epilepsy Council
- Kawasaki Support Group
- Kidsaware
- Klinefelter's Syndrome Association
- Laurence-Moon-Bardet-Biedl Society
- Lennox-Gastaut Syndrome Support Group
- Lissencephaly Contact Group
- Little Hearts Matter
- Lowe Syndrome Association
- Max Appeal
- Meningitis Research Foundation
- Micro and Anophthalmic Children's Society
- Microcephaly Support Group
- Mosaic Down Syndrome UK
- Muscular Dystrophy Campaign
- Myositis Support Group
- National Blind Children's Society
- National Institute of Conductive Education
- National Reye's Syndrome Foundation
- National Society for Phenylketonuria
- NCYPE - National Centre for Young People with Epilepsy
- NDCS - National Deaf Children's Society
- Nephrotic Syndrome In Children Support Group
- Neuroblastoma Society
- Newlife Foundation for Disabled Children
- NOFAS-UK
- Ohdo Syndrome Family Network
- Organic Acidaemias UK
- Osteopetrosis Support Trust
- Perthes Association (for Perthes Disease and other forms of osteochondritis)
- Perthes Association Scotland
- PINNT - Patients on Intravenous and Nasogastric Nutrition Therapy
- Pituitary Foundation
- Positive Parenting and Children
- Potter's Syndrome Support & Contact Group
- Primary Ciliary Dyskinesia Family Support Group
- Primary Immunodeficiency Association
- Proteus Family Network UK
- PUMPA - Purine Metabolic Patients' Association
- PWSA - Prader-Willi Syndrome Association (UK)
- Rett Syndrome Association UK
- Royal College of Paediatrics and Child Health
- RTS - Rubinstein Taybi Syndrome UK Support Group
- S.O.F.T. UK
- Scoliosis Association UK
- Scope (for cerebral palsy and related disabilities)
- Scottish Spina Bifida Association
- Sense - Usher Section
- Shwachman-Diamond Support
- Sick Children's Trust
- SignHealth - The National Healthcare Charity for Deaf People
- Smith-Magenis Syndrome Foundation
- SNIP - Special Needs Information Point
- Society for Mucopolysaccharide Diseases
- STARS - Syncope Trust and Reflex Anoxic Seizures
- Strongbones Childrens Charitable Trust
- Talking Point
- TAR Syndrome Support Group
- Tay Sachs and Allied Disease Association
- The Children's Trust
- Tiny Tickers
- TOFS - Tracheo Oesophageal Fistula Support
- Tourettes Action
- Treacher Collins Family Support Group
- Tuberous Sclerosis Association
- TummyTrouble - supporting children & families with gut motility disorders
- Turner Syndrome Support Society
- Unique (Rare Chromosome Disorder Support Group)
- Williams' Syndrome Foundation
- Willow Foundation (support for seriously ill young adults)
- Wolf Hirschhorn Syndrome Trust
- Xeroderma Pigmentosum Support Group
- XLH Network
- Young ME Sufferers Trust
Disclaimer: Patient UK has no control over the content of any external links above. Inclusion does not imply endorsement by Patient UK.
Want to advertise on this site? Find out how >>