Hormone Conditions (Endocrine Conditions)

This page has been archived. It has not been updated since 18/11/2011. External links and references may no longer work.

For links to sites dealing with hormone related conditions apart from the following topics - which have their own pages of links on Patient UK: diabetes mellitus, over active thyroid (hyperthyroidism), under active thyroid (hypothyroidism), Addison's disease and Cushing's disease/syndrome.

UK sources of information and / or support

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Patient UK has a number of leaflets on hormone conditions and details of various patient support groups relevant to people with hormone conditions.

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Pituitary Foundation

Provides support to people with pituitary conditions. Their website contains numerous factsheets. including information on: Acromegaly; Adult Growth Hormone Deficiency; Craniopharyngioma; Cushing's Disease; Diabetes Insipidus; Hypopituitarism; Non-functioning tumours; Prolactinoma; Empty Sella Syndrome; Kallmann's Syndrome; Rathke's Cleft Cysts; Familial Multiple Endocrine Neoplasia Type 1; Wolfram Syndrome; Septo-Optic Dysplasia; Pituitary dysfunction in traumatic brain injury; Pituitary infarction; Sheehan's Syndrome.

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You and Your Hormones

A website aimed at the general public provided by the Society of Endocrinology. Includes information on: Acromegaly; Addison's disease; Adult growth hormone deficiency; Amenorrhoea; Carcinoid tumour; Childhood onset growth hormone deficiency; Chronic fatigue syndrome; Circadian rhythm sleep disorders; Cushing's disease; Diabetes insipidus; Eating disorders; Empty sella syndrome; Gender identity disorder; Gestational diabetes; Gigantism; Goitre; Hashimoto's disease; Hirsutism; Hypercalcaemia; Hypocalcaemia; Hyponatraemia; Hypoparathyroidism; Hypopituitarism; Insulinoma; Jet lag; Menopause; Multinodular goitre; Multiple endocrine neoplasia type 1; Multiple endocrine neoplasia type 2a; Multiple endocrine neoplasia type 2b; Nelson's syndrome; Non-functioning pituitary tumours; Obesity; Osteoporosis; Paget's disease; Paraganglioma; Phaeochromocytoma; Pituitary apoplexy; Polycystic ovary syndrome; Prader-Willi syndrome; Precocious puberty; Premature ovarian failure; Primary hyperparathyroidism; Prolactinoma; Rickets; Secondary hyperparathyroidism; Tertiary hyperparathyroidism; Thyroid cancer; Thyrotoxicosis; Turner syndrome

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Endobible

A site primarily aimed at health professionals but is also widely used by patients who want to understand more about the management of their conditions. Detailed information about many endocrine (hormone) conditions including: Acromegaly; Cushing's disease; Diabetes insipidus; Growth hormone deficiency; Hypopituitarism; Non functioning pituitary adenoma; Prolactinoma and Hyperprolactinaemia; Graves' disease; Hypothyroidism; Multinodular goitre; Thyroid nodule; Thyrotoxicosis or hyperthyroidism; Addison's disease; Adrenal incidentalomas; Cushing's syndrome; Phaeochromocytoma; Succinate dehydrogenase mutations; Von Hippel Lindau; Gynaecomastia; Hypogonadism; Kallmann's syndrome and hypogonadotropic hypogonadism; Polycystic ovarian syndrome; Premature ovarian failure; Turner's syndrome; Hypercalcaemia; Insulinoma; Multiple endocrine neoplasia type 1; Multiple endocrine neoplasia type 2; Neuro-endocrine tumours; Obesity; Osteoporosis

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AMEND (Association for Multiple Endocrine Neoplasia Disorders

The Association for Multiple Endocrine Neoplasia Disorders (AMEND) is a patient support group set up in 2002 in order to offer help and information for the rare genetic conditions of MEN1 and 2.

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Testosterone Deficiency Centre

Offers information regarding detection, testing, treatment and therapies for people with testosterone deficiency (hypogonadism). also provides email support.

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Hyperparathyroidism UK

HPTH UK is a national voluntary organisation working to benefit all those affected by Hypoparathyroidism and other rare parathyroid disorders.

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Hyperparathyroidism - cinacalcet

A patient guide to complement the NICE guideline of the same name for health professionals.

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Medicine Guide for Acromegaly

Provides detailed information about the drugs available to treat this condition. Medicine Guides provide reliable information about medicines, conditions and the different treatment options available. They have been developed in the UK as part of the Medicines Information Project.

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Medicine Guide for Adrenal gland cancers

Provides detailed information about the drugs available to treat this condition. Medicine Guides provide reliable information about medicines, conditions and the different treatment options available. They have been developed in the UK as part of the Medicines Information Project

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Medicine Guide for Adrenal function (testing of)

Provides detailed information about the drugs available to treat this condition. Medicine Guides provide reliable information about medicines, conditions and the different treatment options available. They have been developed in the UK as part of the Medicines Information Project.

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Medicine Guide for Androgen Deficiency

Medicine Guides provide reliable information about medicines (drugs), conditions and the different treatment options available. They have been developed in the UK as part of the Medicines Information Project.

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Medicine Guide for Carcinoid Tumours

Medicine Guides provide reliable information about medicines (drugs), conditions and the different treatment options available. They have been developed in the UK as part of the Medicines Information Project. Includes detailed information about medicines used to treat carcinoid tumours.

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Medicine Guide for Growth Hormone Deficiency

Medicine Guides provide reliable information about medicines (drugs), conditions and the different treatment options available. They have been developed in the UK as part of the Medicines Information Project.

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Medicine Guide for Hormone Dependent Cancers

Medicine Guides provide reliable information about medicines (drugs), conditions and the different treatment options available. They have been developed in the UK as part of the Medicines Information Project.

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Medicine Guide for Hormone Producing Tumours

Medicine Guides provide reliable information about medicines (drugs), conditions and the different treatment options available. They have been developed in the UK as part of the Medicines Information Project.

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Medicine Guide for Pituitary function (testing of)

Medicine Guides provide reliable information about medicines (drugs), conditions and the different treatment options available. They have been developed in the UK as part of the Medicines Information Project.

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Medicine Guide for Hormone deficiency (androgen)

Provides detailed information about the drugs available to treat this condition. Medicine Guides provide reliable information about medicines, conditions and the different treatment options available. They have been developed in the UK as part of the Medicines Information Project.

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Gentle Giant

A site about pituitary gland problems. The author suffered from gigantism as a child. His pituitary gland was removed at the age of 11 (in 1981), and he has been taking medication ever since.

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British Society of Paediatric Endocrinologists

A professional organisation but includes lots of factsheets on childhood hormone related conditions on their patient information section. Includes factsheets on:

  • Achondroplasia
  • Congenital Adrenal Hyperplasia
  • Complete Androgen Insensitivity Syndrome (CAIS)
  • Congenital Hypothyroidism
  • Coeliac Disease
  • Delayed Puberty
  • Diabetes Insipidus
  • Grave's Disease (Thyrotoxicosis)
  • Growing Pains
  • Gynaecomastia Hypopituitarism
  • Hypothyroidism
  • Klinefelter's Syndrome
  • Labial Adhesions
  • Marfan's Syndrome
  • Overweight
  • Partial Androgen Insensitivity Syndrome (PAIS)
  • Precocious Puberty
  • Steroid Replacement Steroid Treatment
  • Tall Stature
  • Turner's Syndrome

Further sources / more detailed information

Some non-UK sites

The following list popular non-UK health information sites with content aimed at the general public. They are mainly from the US. They have not been checked to see if information about the above topic is included but these large sites are comprehensive.

More detailed medical information

The following list online sources of more detailed medical information, mainly from the UK. These sites are mainly aimed at health professionals, but are of interest to all. They have not been checked to see if information about the above topic is included, but information about most medical topics can usually be found.