UK sources of information and / or support
Has information leaflets on Down's Syndrome and Pre-natal Screening and Diagnosis of Down's Syndrome.
Help for people with downs syndrome their families and carers.
Works to improve the quality of life for everyone with Down's syndrome in Scotland.
Information for parents and medical professionals on Down's syndrome medical research and targeted nutritional intervention with links to key websites in the USA & Canada.
A UK charity providing support and information to families who have a member with Down's Syndrome and associated congenital heart problems. They also have some overseas members.
Their applied research and practical support improve education and transform the lives of many thousands of children with Down's syndrome around the world. The website includes useful advice and practical information on the care and education of children with Down's syndrome
This site provides essential information for healthcare professionals on 'best practice' medical care for people with Down's syndrome in the UK and Ireland. It has been produced by the UK Down's Syndrome Medical Interest Group (DSMIG), a network of doctors whose aim is to ensure equitable provision of medical care for all people with Down's syndrome in the UK and Republic of Ireland. The website also includes links to many resources for parents.
The website (and associated e-group) is designed as a support tool for parents of children with Mosaic Down Syndrome in the UK (although International members are warmly welcomed).
This site is edited by Derek McLintock, BSc MB BS FRCOG, a Consultant Gynaecologist and Obstetrician based in Hertfordshire, UK.
IPSEA offers free and independent advice on Local Education Authorities' legal duties to assess and provide for children with special educational needs. These include children with physical disabilities, sensory impairment, emotional and behavioural difficulties, general and specific learning difficulties (including those arising from specific conditions such as Down's Syndrome, autism and dyslexia).
Information from NHS Choices - the government's patient information portal.
Information from BUPA.
Further sources / more detailed information
Some non-UK sites
The following list popular non-UK health information sites with content aimed at the general public. They are mainly from the US. They have not been checked to see if information about the above topic is included but these large sites are comprehensive.
More detailed medical information
The following list online sources of more detailed medical information, mainly from the UK. These sites are mainly aimed at health professionals, but are of interest to all. They have not been checked to see if information about the above topic is included, but information about most medical topics can usually be found.
- PatientPlus - hundreds of medical reference articles provided by Patient UK.
- Evidence Based Medicine - such as from Clinical Evidence, The Cochrane Library, etc.
- Database of UK Clinical Guidelines - from NICE, SIGN, etc.
- Medline - abstracts available from thousands of journals.
- Sites listing free online medical textbooks and journals.
- Sites listing free medical images - pictures, atlases, anatomy, skin diseases, etc.